Terms of Service

MC1R Data Foundation

Last updated: July 2025

1. Agreement to Terms

These Terms of Service ("Terms") govern your use of the MC1R Data Foundation website and services. By accessing or using our website, participating in our research studies, or using any of our services, you agree to be bound by these Terms.

If you do not agree to these Terms, please do not use our services. We reserve the right to modify these Terms at any time, and such modifications will be effective immediately upon posting.

2. Definitions

"Service"

Refers to our website, research studies, and all related services provided by MC1R Data Foundation.

"User"

Refers to any individual who accesses or uses our Service, including research participants.

"Content"

Refers to all information, data, text, graphics, and materials available on our Service.

"Research Data"

Refers to information collected through our research studies and surveys.

3. Use of Service

3.1 Permitted Uses

You may use our Service for the following purposes:

  • Accessing information about our research studies
  • Participating in research studies (if eligible)
  • Reading educational content about sun protection and MC1R genetics
  • Contacting us with questions or feedback
  • Accessing research results and publications

3.2 Prohibited Uses

You agree not to:

  • Use the Service for any unlawful purpose
  • Attempt to gain unauthorized access to our systems
  • Interfere with or disrupt the Service
  • Submit false or misleading information
  • Use automated tools to access the Service
  • Attempt to reverse engineer our systems

4. Research Participation

4.1 Eligibility

To participate in our research studies, you must:

  • Be at least 18 years of age
  • Meet the specific eligibility criteria for each study
  • Provide informed consent
  • Reside in eligible geographic locations

4.2 Consent and Withdrawal

By participating in research:

  • You provide informed consent for data collection and use
  • You may withdraw from participation at any time
  • Withdrawal does not affect data already collected and analyzed
  • You may request deletion of your personal data

4.3 Data Accuracy

You are responsible for providing accurate and truthful information in research surveys and forms. Providing false information may result in exclusion from research participation and potential legal consequences.

5. Intellectual Property

5.1 Our Rights

The Service and its content are owned by MC1R Data Foundation and are protected by intellectual property laws. This includes:

  • Website design and layout
  • Research protocols and methodologies
  • Educational content and publications
  • Logos, trademarks, and branding
  • Software and technical systems

5.2 Research Data

Research data collected through our studies:

  • Remains the property of MC1R Data Foundation
  • May be used for research and publication purposes
  • Will be de-identified when shared publicly
  • May be shared with research partners under appropriate agreements

5.3 Your Contributions

By submitting content to our Service (such as survey responses, feedback, or images), you grant us a non-exclusive, royalty-free license to use, modify, and distribute such content for research and educational purposes.

6. Privacy and Data Protection

Your privacy is important to us. Our collection, use, and protection of your personal information is governed by our Privacy Policy, which is incorporated into these Terms by reference.

Key Privacy Commitments:
• We do not sell your personal information
• We use appropriate security measures to protect your data
• You have rights to access, correct, and delete your data
• We comply with applicable data protection laws

7. Disclaimers and Limitations

7.1 Medical Disclaimer

The information provided through our Service is for educational and research purposes only. It is not intended as medical advice, diagnosis, or treatment. Always consult with qualified healthcare professionals for medical concerns.

7.2 Research Disclaimer

Research results and findings are preliminary and may change as more data is collected. We do not guarantee the accuracy, completeness, or reliability of research outcomes.

7.3 Service Availability

We strive to maintain service availability but do not guarantee uninterrupted access. We may modify, suspend, or discontinue the Service at any time without notice.

7.4 Limitation of Liability

To the maximum extent permitted by law, MC1R Data Foundation shall not be liable for any indirect, incidental, special, consequential, or punitive damages arising from your use of the Service.

8. Indemnification

You agree to indemnify and hold harmless MC1R Data Foundation, its officers, directors, employees, and agents from any claims, damages, losses, or expenses arising from:

  • Your use of the Service
  • Your violation of these Terms
  • Your participation in research studies
  • Any content you submit to the Service

9. Governing Law and Dispute Resolution

These Terms are governed by the laws of the jurisdiction where MC1R Data Foundation is established. Any disputes arising from these Terms or your use of the Service shall be resolved through:

  • Good faith negotiation between parties
  • Mediation if negotiation fails
  • Binding arbitration as a last resort
  • Court proceedings only if arbitration is not available

10. International Users

Our Service may be accessed from countries around the world. By using our Service, you acknowledge that:

  • You are responsible for compliance with local laws
  • Data may be transferred internationally
  • Service availability may vary by location
  • Research participation may be limited by geographic restrictions

11. Severability

If any provision of these Terms is found to be unenforceable or invalid, the remaining provisions will continue to be valid and enforceable. The unenforceable provision will be modified to the minimum extent necessary to make it enforceable.

12. Changes to Terms

We reserve the right to modify these Terms at any time. Changes will be effective immediately upon posting on our website. Your continued use of the Service after changes constitutes acceptance of the modified Terms.

We will notify users of material changes through email or website announcements when possible.

13. Contact Information

If you have any questions about these Terms of Service, please contact us:

Email: legal@gingerscience.org
Address: MC1R Data Foundation
Subject Line: Terms of Service Inquiry

We will respond to your inquiry within a reasonable timeframe.